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Multiple Sclerosis

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A disease of young people

Ripley Davenport swimming the Kenmare River in Ireland pulling his supplies behind him.

Ripley Davenport swimming the Kenmare River in Ireland pulling his supplies behind him.

I've never thought of MS as a disease of the young.  I thought it was something that happened when you get older and need a walker or wheelchair and all of that.  Honestly, I didn't even know what it was until my sister was diagnosed.  But, most people are diagnosed between 30 (which we all know is the new 20) and 40 (which must be the new 30).  People are living longer and feeling younger.  Let's find some other youngsters out there who aren't letting MS win.

Here's one!  Ripley Davenport.  www.ripleydavenport.com  This badass crossed Mongolia, on foot!  He man hauled his gear in a cart he made.  I'm so happy I have a horse!

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Don't Let the Fvckers Get You Down

When I was going through my diagnosis with the MRI's, blood drawing, spinal tap, spinal head ache, injections,  my first infusion, blah blah blah,  I was having a really hard time.  My friend sent me this video.  It worked!  I dressed in all black with black sunglasses and pretended I was a vampire from that Jim Jarmusch movie "Only Lovers Left Alive" and I needed to sneak into the hospital to get my blood..... and listened to this.  It makes me wanna scream! And jump around and shave my head (maybe not that far) and make the most out of every day!!  It was my war cry, and so.... you're welcome.


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Good news/Bad News

Well, I was putting off going full force on preparing for the ride because I had 6 months to try and get pregnant!  I wanted to get pregnant before starting Tecfidera.  It's a new drug for MS that you shouldn't get pregnant on.  My Neuro gave me a few months, but it didn't happen :(  But the good news is, I can do the ride!  I wouldn't have been able to with a baby.  Everything happens in the only way it can happen.   So, onward and upward!  Time for an adventure!  Maybe I'll try again next year .  Let's see how this medicine works!  Is it weird that I like getting an MRI?  I think it's so interesting to be a little science experiment and look inside my brain!  It's also cool to see if what you have been doing is affecting the lesions.  I'll let you know!

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